LiveOnNY (formerly New York Organ Donor Network)

Organ Procurement Transplant Network 

Gift of Life Family Transport

New York Center for Liver Transplantation

Leave The Light On Foundation An organization comprised of former caregivers who have joined together to help current caregivers in need of support.

Kidney School Individual learning modules about kidney disease, treatment options, etc.

Musculoskeletal Transplant Foundation The Musculoskeletal Transplant Foundation (MTF) is a non-profit service organization dedicated to providing clinically sound, safe allograft tissue. 

Life Options Rehabilitation Program Educational materials and links for renal patients.

National Transplant Assistance Fund (NTAF) Assists patients with fundraising and provides grants for eligible patients.

Renal Support Network Helps patients and families with kidney disease communicate with other patients and families with kidney disease.

Transplant Living Sponsored by UNOS, provides patient information regarding transplant.

Transplant Patient Partnering Program (TPPP) Provides patient education materials.

Transweb News and events for transplant patients.

Transplant Recipients International Organization (TRIO) San Francisco Bay Area

American Society of Transplantation Patient educational brochures in English and Spanish.

Centerspan News, government and professional articles on transplantation.

Children’s Organ Transplant Association (COTA) Resources for children with transplants. On line brochure.

Social Security and Disability Resource Center Provides answers to questions about how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants.

Ikidney.com Patient education articles about kidney disease. 

Kidney & Urology Foundation of America, Inc. Dedicated to helping millions of Americans avoid the debilitating effects of kidney, urinary, and related diseases and to fostering groundbreaking research. 

National Foundation for Transplants Health care and financial support, services and patient advocacy for transplant candidates, recipients, and their families.

1102 Brookfield, Suite 200
Memphis TN 38119
(800) 489-3863

National Kidney Foundation (NKF) Information on organ donation, renal transplant, and dialysis.

30 E. 33rd Street, Suite 1100
New York NY 10016
(212) 889-2210/(800) 622-9010

TSO – Transplant Support Organization

1335 Mace Avenue
Bronx, NY 10469
914- 576-6617
email4tso@gmail.com

TRIO – Transplant Recipients International Organization Long Island Chapter

P O Box 81
Garden City, NY 11530
516-942-4940/631-421-3258
litrio@verizon.net

TRIO – Transplant Recipients International Organization 

2117 L Street, #353
Washington, DC 20037
800-trio-386

TSL – Transplants Save Lives Rockland Chapter
P O Box 516
Nanuet, NY 10954
845-627-2240
newhart93@aol.com

American Association of Kidney Patients patient information about kidney disease.

3505 East Frontage Road
Suite 315
Tampa, FL. 33607
800-749-2257
info@aakp.org

American Diabetes Association Excellent information about Type I and Type II Diabetes.

National Call Center
1701 North Beauregard Street
Alexandria, VA 22311
800-diabetes

American Kidney Fund (AKF) Provides education, research and financial assistance for kidney patients.

6110 Executive Blvd, Suite 1010
Rockville, MD 20852
800-638-8299

Polycystic Kidney Research Sharing Articles, audiotapes and online resources covering the basic PKD.

9221 Ward Parkway, Suite 400
Kansas City, MO 64114-3367
800-pkd-cure

United Network for Organ Sharing (UNOS) Statistics about transplants and transplant centers.

P O Box 2484
Richmond, VA 23218
804-782-4800

Books

All books are available at Amazon.com or can be ordered at local bookstores.

Chronically Happy Joyful living in spite of Chronic Illness by Lori Hartwell.

New Life: Lessons in Faith and Courage from Transplant Recipients by Bob Violino.

Confessions of a Kidney Transplant Recipient by Mary Wu (a TSO member).